Executive Director Patient Advocacy

Kyverna Therapeutics is a patient-centered, clinical-stage biopharmaceutical company developing cell therapies for patients suffering from autoimmune diseases. Guided by our core values, Stay True to Why, Collaborate to Accelerate, Lead with Clarity, Boldly Innovative, and Own the Outcome, we are committed to transforming the future of treatment for autoimmune disease. Join us at the forefront of cell therapy innovation and help redefine what’s possible.

 

Kyverna is seeking an Executive Director, Patient Advocacy, to lead our patient advocacy strategy and outreach efforts. This business-critical role is responsible for building, owning and advancing strategic relationships with patient advocacy organizations across the autoimmune, rare disease and CAR T-cell therapy landscape. The Executive Director will serve as Kyverna’s primary interface with patient communities, to increase disease education and awareness, develop patient support services as needed, promote research and development of new therapies, and drive forward patient-centric public policies.

 

Title: Executive Director, Patient Advocacy

Reports to: SVP, Corporate Affairs, Communications and Investor Relations

Location: Remote Eligible

Travel: up to 25%

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Responsibilities:

• Develop and execute a long-term patient advocacy strategy aligned with Kyverna’s corporate objectives and the evolving needs of patient communities.
• Serve as a strategic liaison between Patient Advocacy and cross-functional partners including Medical Affairs, Clinical Development, and Commercial to ensure patient insights inform decision-making across the organization, including clinical development strategies and patient support initiatives. 
• Develop and maintain deep, trusted relationships within the autoimmune and rare disease patient advocacy communities as well as relevant CAR T-cell therapy organizations and associated stakeholders.
• Develop and implement programming with patient groups where Kyverna may provide appropriate support and engagement, including, but not limited to, disease awareness campaigns, patient support initiatives, patient roundtables, clinical trial recruitment and public policy work.
• Represent Kyverna at key patient advocacy meetings and conferences.
• Manage corporate sponsorships, programs and initiatives in partnership with  patient advocacy groups.
• Develop the relevant patient materials needed to support sponsorships and/or educational initiatives with patient advocacy groups.
• Partner with Corporate Communications and other relevant functions to highlight patient sponsorships and related initiatives internally and externally, as appropriate.  
• Manage corporate grants to ensure compliance with policies and reporting requirements.
• Monitor trends within the patient advocacy community and provide relevant strategic insights and updates to leadership as well as feedback to leadership regarding the patient advocacy community’s perception of the company and associated activities.
• Prepare senior leaders for meetings with the patient advocacy community and provide feedback post engagements.
• Support Kyverna’s community engagement efforts with charitable organizations.
• Ensure compliance with all relevant rules and regulations associated with engagement with non-profit organizations and fulfill any reporting requirements.

Qualifications

• Bachelor’s or Master’s degree in Communications, Business, Life Sciences, Biotechnology, or a related field.
• 15+ years of experience building and leading patient advocacy relationships and programs with experience in CAR-T, cell therapy, autoimmune, and/or rare diseases strongly preferred.
• Strong track record for partnering and collaborating with business leaders to understand business goals.
• Excellent communication skills, with the ability to translate complex scientific data into patient-friendly language.
• Ability to build strong relationships and work effectively and credibly with senior leadership and a wide variety of teams across a company. 
• Strong personal network of patient advocacy relationships.
• Understanding of regulations associated with biotech/pharma companies’ engagement with non-profits and patient advocacy organizations.
• Comfortable operating and driving results in a dynamic and highly innovative environment.
• Detail-oriented, well-organized self-starter; experienced in managing multiple projects simultaneously; flexibility and results-oriented focus are essential.

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The base salary range for this position is $275K-$300K annually. This salary range is an estimate of what we reasonably expect to pay for this posted position, and the actual salary may vary based on various factors that may include but are not limited to quality and length of experience, education, geographic location and alignment with market data. 

 

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